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+Stories

Alex Odam – ADHD & OCD

This ND + Story is from Alex Odam, a London-based Director of Photography, Editor & Colourist.

 

 

Name: Alex Odam
ND Type/s: ADHD & OCD
What do you do: Director Of Photography & Editor
Where do you live: Wimbledon

How did you start your day – do you have a morning routine. And what do you have for breakfast, do think a good diet is important?
I don’t really have a set morning routine. But I start my day after I’ve made myself a proper espresso, which I have with a smoke. I don’t have breakfast.

How do you stay active?
I don’t drive, so get around on my Carerra road bike, my micro scooter or I walk really fast! Something I do, is set myself mini challenges, my own little races – whether it’s against myself, my watch or a bus. I randomly start a race with a car, another person or anything else going in my direction. If I lose, I immediately start my next race. When I win, it’s like I’ve won a Grand Prix r.

What do you do to relax?
Two ways. 1) I have a high-spec F1 racing simulator, a very realistic experience where I find peace in the rhythm, fully emersed.
2) I relax on my sofa watching a well-made TV show, documentary or film, looking out for inspiration and evolving my skill set.

Do you have a favourite word or phrase?
It is what it is.

Have you read, watched or seen anything good recently? Is there a book, play or film that moved you?
Clockwork Orange – both the book and the film, together.

Which 5 albums will you want to have with you on a desert island?
• Dark Side of The Moon – Pink Floyd
• Discovery – Daft Punk
• The Night Fly – Donald Fagen
• Submarine – Alex Turner
• Selling England by The Pound – GENESIS
• PLAY – Moby

What is the best piece of advice you’ve ever received and who was it from?
Reddit.com/r/ADHD

When you were young, what did you want to be when you were a grown-up? And what was your first Job?
Filmmaker. My first job was when I was twelve and I got paid £500 to design a band’s touring merch.

What do you do now and how did you get into it?
I’m a director of photography, editor, a colourist. I’m a multi-instrumentalist recording artist and I make film scores.

Creativity and thinking differently are often credited to neurodiversity. Would you say that is true? And if yes, could you give an example?
YES 100% It’s like we see, feel and sense in 4D, rather than 3D. We are open, curious, look deeper and experience emotions authentically.

When you feel overwhelmed or unfocused, or have lost your focus, what do you do to get back on track? Do you have any hacks, tips or do you use any apps to keep you on track during the day?
Be kind to yourself, kind in spades. A deep breath, slow down and take it easy. And when the time is up and a call comes in. Take it

What makes you happy?
• Family, people I love, those who are close to me. Formula 1.
• Having been fortunate enough to share my love with a child. Nurturing.
• Seeing stuff that is made well and designed beautifully.
• Listening to good music, on good speakers, or headphones. Always.

What has been your biggest achievement so far?
At 18 I got a job with Google on a £40K pa salary. After that I spent 8 years working on the BBC’s Apprentice

Does your neurodiversity have an impact on the way you approach relationships?
Yes, 100%. I come clean pretty much straight away.

Tell us something about your ND experience, that you think not many people will know, or understand?
We live with our hearts on our sleeves. We feel deeply, we love, we live.

If given the choice, right now, to start over again – to ND or not ND?
I would not change anything

Do you have a Positive ND message to the world? Imagine you have a £5 million advertising campaign to spend on billboards all over the world. What would you say?
I would make a film, shoot, direct, edit and tell the story where the main character’s antagonist is his ADHD. It would be a visual and immersive experience.

Final question – where can people find out more about you. Do you have a website and social media pages.

My website

Vimeo

Instagram

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+Stories

Lennie Varvarides – Dyslexia & ADHD

This ND + Story is from Lennie, Creative Producer, of DYSPLA, a neurodivergent-led, award-winning arts studio producing and developing the work of neurodivergent storymakers, supported by the Arts Council England.

DYSPLA

 

 

 

 

 

 

 

 

 

 

 

Name: Lennie Varvarides
ND Type/s: Mainly Dyslexic and ADHD
What do you do: I am the founder of DYSPLA and also run a talent agency called MSFT Management.
Where do you live: North London

How did you start your day? Do you have a morning routine? Do you think a good diet is important?
I always aim for a morning routine. I long for one. When I am good, I follow the rule of waking up early to read or write. I used to meditate in the mornings too - but I have not felt as zen since Lockdown and I am not really keeping up my meditation routine. I find it takes a lot of discipline to stay consistent and sometimes, discipline needs discipline. Breakfast is a big deal in our home. It’s the only meal we all eat together at the table, so yes, it’s important.

How do you stay active?
I love to walk and aim for 13K steps a day. Before Lockdown I had a good physical routine that involved cycling to work and swimming once a week. I even started jogging… but that all went out the window when I put on my Lockdown weight, and I have not been good at shifting it.

What do you do to relax?
I love reading - I never thought I would say that, but I do. In 2018 I started reading and that was the first time since doing my MA. Working life takes hold of you and it’s hard to learn how to carve out time for yourself. Organising my time never came easy, so I have missed out on a lot of personal development.

Do you have a favourite word or phrase?
Yes, my favourite word in the world is DYSPLA

Have you read, watched or seen anything good recently? Is there a book, play or film that changed your life?
There are many good books and films. Theatre changed my life, it gave me life. I fell in love with words and performance when I was 8, so I have always been drawn to watching and writing plays and reading poetry. I have only ever wanted to create, develop, and direct stories. In terms of recent watching and reading - I have just finished watching MAIDS - an American drama on Netflix, inspired by Stepanie Land’s memoir Maid: Hard Work, Low Pay, and a Mother’s Will to Survive and am currently reading Pedagogy of the Oppressed, by Brazilian educator Paulo Freire. I am particularly interested in consuming content that focuses on social, educational and economic justice.

Which 5 albums will you want to have with you on a desert island?
I would want the best of Eminem, The Fugees, Elvis Presley, Nina Simone and Billie Holiday.

What is the best piece of advice you’ve ever received and who was it from?
My art tutor at Camberwell College of Arts told me to use my Dyslexia to make art. This advice changed my life.

When you were young, what did you want to be when you were a grown-up? And what was your first Job?
I always wanted to be a story maker but my first job at 13 years old was a shampoo girl at my local hairdressers.

What do you do now and how did you get into it?
I have been working for myself for the past 12 years, running DYSPLA with Kazimir Bielecki since 2013 and MSFT Management with other freelance talent agents since 2011.

Creativity and thinking differently are often credited to neurodiversity. Would you say that is true? And if yes, could you give an example?
I fundamentally believe that being neurodivergent is a creative advantage and with the right support and the right networks, neurodivergent people have the story making advantage. An example of this is DYSPLA and I want to grow the evidence of this via the new publication I have created called The Museum of the Neurodivergent Aesthetic.

When you feel overwhelmed or unfocused, or have lost your focus, what do you do to get back on track? Do you have any hacks, tips or do you use any apps to keep you on track during the day?
When I feel overwhelmed, I usually sleep. When I am unfocused, I try to read or write or go for a walk or a swim. I love using the alarm clock on my phone to keep me on track – I have an alarm set for almost everything from leaving the home on time, to getting ready for bed.

What makes you happy?
Lots of things; my home, my family, my writing, my coffee before work, listening to old records, long baths, getting my hair washed at my local salon.

What has been your biggest achievement so far?
My daughter’s love.

Does your neurodiversity have an impact on the way you approach relationships?
Being an ND person is the impact. It forms the DNA within us. It is the reason we fail to maintain good relationships and the root of all our struggles with mental health and low self-esteem. If you are working class, it is also the reason you fail more than you succeed. The more we all learn about ND, both the negative sides as well as the positive associations, the more we can all help each other to reach our full potential.

Tell us something about your ND experience, that you think not many people will know, or understand?
Others, who are not ND themselves, may not understand how quickly I crash into a state of nothingness. Sometimes, I cannot move even if I want to.

If given the choice, right now, to start over again — to ND or not ND?
I can’t really answer that question. I wish things were easier, of course I do… I wish I could do simple things as easily as others… but what good is it to wish for another life when this one still is a working progress.

Do you have a Positive ND message to the world? Imagine you have a £5 million advertising campaign to spend on billboards all over the world. What would you say?
I still stand by the mantra that dyslexics are authentic story makers, so I would probably run a campaign calling for the creative industries to hire dyslexics…
“Dyslexics are better story makers, make them part of your office furniture so they have a seat at your table.”

Thank you for sharing your + Story with us Lennie, final question — where can people find out more about you. Do you have a website and social media pages?

I’m always looking to connect with others interested in creativity, disability, activism, and neurodiversity. Happy to connect via any of the links below:

Email: lennie at dyspla dot com
Twitter: @DYSPLA_Festival
Instagram: dyspla_festival
Facebook: DysplaFestival
Sign up via DYSPLA CHAT
Subscribe via Youtube

More on DYSPLA_chat: A monthly 1 hour informal group peer to peer zoom chat with DYSPLA, discussing Neurodivergent creative methodology, strategies, projects and inspiration. DYSPLA’s creative directors will be on call to chat with anyone who needs to. Meetings will be recorded and confidentiality stored for the prosperity of DYSPLA’s Neurodivergent Aesthetic research.

Categories
+Stories

Aquayemi-Claude Garnett Akinsanya (Claude)

Name: Aquayemi-Claude Garnett Akinsanya (Claude)
ND Type/s: Developmental Coordination Disorder DCD dyspraxia, Dyslexia, Dyscalculia , Autistic Spectrum (ASD), Obsessive compulsive disorder (OCD) and Epilepsy which is managed
What do you do: Student, author, campaigner, youth delegate, entrepreneur, keynote public speaker and philanthropist
Where do you live: London, England

 

 

 

 

 

 

 

 

How did you start your day – do you have a morning routine. And what do you have for breakfast, do think a good diet is important?

I am a person who likes to have a routine. I can find it hard being out of a routine and as I have not been in formal education for 5 years, this is a challenge for me and I still find it hard at times.

How do you stay active?

By keeping my mind active, for example; reading, creative art, dance, swimming, horse riding and song writing.

What do you do to relax?

I meditate.

Do you have a favourite word or phrase?

I believe in what I like to call ‘Signature Uniqueness’. It means that we are all unique and that our uniqueness is our signature.

Have you read, watched or seen anything good recently? Is there a book, play or film that changed your life?

I recently saw a film which I loved from the beginning to the end. It’s called Abominable

Which 5 albums would you want to have with you on a desert island?

Michael Jackson – Heal the World
Anne Marie – Therapy
James Brown – Revolution of the Mind: Live at the Apollo, Volume III
Nina Simone – The Very Best of Nina Simone
Sam Smith – In the Lonely Hour

What is the best piece of advice you’ve ever received and who was it from?

Be the best version of yourself – from my Mother

When you were young, what did you want to be when you were a grown-up? And what was your first Job?

To be a photographer and travel the world.

What do you do now and how did you get into it?

I am a student, author, youth delegate, campaigner, keynote public speaker, entrepreneur, singer songwriter and philanthropist. I am a campaigner for equality, inclusion, education, peace, justice, mental health and well-being. I created ‘Claudes SEN Law’, because of my own educational journey of being denied a SEN education. I want to help create an inclusive world for Neurodiverse people with hidden disabilities.

Creativity and thinking differently are often credited to neurodiversity. Would you say that is true? And if yes, could you give an example?

Yes, because we have the ability to think outside the box with innovation and creativity, coming up with ideas that were never considered before.

When you feel overwhelmed or unfocused, or have lost your focus, what do you do to get back on track? Do you have any hacks, tips or do you use any apps to keep you on track during the day?

Meditation helps me and I also listen to music all day and all night long – sometimes I write songs or poems.

What makes you happy?

When I know what is happening in my life. And also music.

What has been your biggest achievement so far?

Writing my first book and getting it published.

Does your neurodiversity have an impact on the way you approach relationships?

No because I am all about focusing on myself right now. I need to love myself before I can love anyone else.

If given the choice, right now, to start over again – ND or not ND?

Without question I would not change a thing about who I am today. I love my ‘Signature Uniqueness’ abilities, identity and personality.

Do you have a Positive ND message to the world? Imagine you have a £5 million advertising campaign to spend on billboards all over the world, what would you say?

My message for the world would be: It is time for people to not hold back their hidden abilities and disabilities. We are all beautifully created with our ‘Signature Uniqueness’ and we all have abilities that can make us grow. My advice for life is to be bold, tell yourself, friends, families, and maybe even the world that you are beautiful and that you love your uniqueness because you have the ability change and to have confidence in yourself.

Final question – where can people find out more about you? Do you have a website and social media pages?

Instagram

Twitter.com

Facebook

Youtube

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+Stories

Reannon Tapp. Hidden Capacities

Name: Reannon Tapp
ND Type/s: Dyslexia
What do you do: Founder of Hidden Capacities
Where do you live: East of England

 

 

 

 

 

 

 

How did you start your day – do you have a morning routine –what do you have for breakfast, do you think a good diet is important?
I prefer waking up naturally in the morning rather than to an alarm – an abrupt start seems to take me a while to flow into, so anything that promotes a natural awakening always seems to get the best out of me. An ND mind has to endure a lot throughout the day, so, yes breakfast is an essential fuel. I would like to say that I’ve nailed a morning routine but that would be a lie. I go through periods of being ultra-conscious about breakfast, eating foods that are great for my brain performance and function, to food being the last thing on my agenda. This is something I need to work on as when I do have a decent breakfast routine, I notice such a difference.

How do you stay active?
I like to mix up what I do to stay active so that I don’t get bored. It is very important to me to not sacrifice my health or wellbeing for my work, or any other aspect of my life. Quads and skateboarding work well for me as they are easy things to do around a busy schedule, especially on days when my time management is poor. I like that I can do these things by myself, and get my introverted down-time needs met. Martial arts, breathwork, movement and dance have also featured a lot throughout my life.

What do you do to relax?
Music is probably my fastest route into relaxing. I also find that writing poetry, sitting under trees, photography, cooking, swimming in the sea, learning German, and connecting with family and friends all help me to relax. I’m also hoping to learn Transcendental Meditation, which might help me to relax more efficiently.

Do you have a favourite word or phrase?
I believe in Hidden Capacities mantras, for example, ‘Be Y-our Extraordinary!’ This relates to how being our authentic ND selves and not masking who we really are can be a difficult journey to reach and sustain. What we choose to share and how we relate to our neurodiversity is unique and needs to be respected. It also refers to the hope that if more people own and feel proud of their true ND self, then more people will hopefully be influenced and a brighter future will be paved for us all.
Another Hidden Capacities mantra is ‘With you in neuro-coexistence’, this acknowledges that so much is changing for our beautiful and vast ND community right now. Attitudes, perceptions, and the language we use are all evolving. This phrase promotes the idea that we will only be able to give these changes real justice if we stand together.

Have you read anything good recently? Is there a book that changed life?
I recently listened to the works of Anita Moorjani – Sensitive Is the New Strong. I’m fascinated by the fact that the gifts of neurodiversity can also bring with them their own unique challenges in society. For example, one of my personal processing gifts is that I experience very high empathy levels. When you’re an empath, prioritising everyone else’s thoughts, feelings and needs over your own can run you down and pull you in too many different directions. Anita’s book has helped me to ensure that being empathetic to the needs of others is no longer at the expense of my own health and well-being.
I’m also fascinated by the works of Mick Collins, author of The Unselfish Spirit & A Visionary Spirit. Mick brings together knowledge from so many disciplines and cultures like a magpie and has this way of synthesising them, even if they are polarised perceptions. Mick challenges how we relate to mental health experiences as well as explore ways our humanity can transform beyond this period of collective chaos and uncertainty.

Which 5 albums will you want to have with you on a desert island?
My music taste is eclectic and committing myself feels difficult… so I have decided to spin this question creatively and cheat, linking artists to my top desert island moments instead.

RavenEye & Greta Van Fleet – for the arrival onto this imaginary island.
Nothing But Thieves & Laura Mvula – for those ‘dance like no one’s watching’ moments.
Alfred Nomad & Chloe Castro – for introverted pauses.
Twenty One Pilots & The Coathangers – for building the momentum to escape and build a raft.
Battle song to keep going – Barbara Dane – ‘I’m on my way’

What is the best piece of advice you’ve ever received and who was it from?
The best piece of timely advice I can think of was written to me in a book when I had consciously decided to stop masking and share my neurodiversity. I was at a vey low point in my life and felt like a failure for not coping with the inaccessible systems and stigma I had come across. The book was Margaret Rookes’ Creative Successful Dyslexic, it contains a lot of collective encouragement but the words my mum had written in the front were ‘Never forget that you can do and achieve anything you want to! So proud of you.’ This encouragement may seem like a small gesture, but I really needed to hear it at the time. It inspired me to create Hidden Capacities, it helped me to keep evolving on my personal ND journey as well encourage me to surround myself with people that do care and embrace me for who I really am.

What do you do now and how did you get into it?
I founded Hidden Capacities, a start-up organisation which continues to evolve. This organisation was born out of both privilege and adversity. The privilege was that I was able to receive neurodiversity coaching from Genius Within as part of a job role. It was the first time I had ever come across a professional with so much specialist ND knowledge (both the difficulties and the gifts). The coach’s level of expertise meant that it felt safe to share my processing gifts and difficulties without fear of being misinterpreted or judged.

In terms of adversity, I have experienced prejudice, pseudo-diagnosis and stigma. I’ve worked with people who are neurodiverse for most of my life, so our collective struggles are something that weighs heavily on me but I’m also very optimistic that, with each passing day, change is coming.

Hidden Capacities wants to ignite people’s interest in what amazing organisations and projects are out there, we offer creative training workshops focused on the subtleties of neurodiversity that are often missed and also provide scholarship awards.

Creativity and thinking differently are often credited to neurodiversity. Would you say that is true? And, if yes, could you give an example?
Processing differently certainly gives a lot of people a natural creative edge, as they already think dynamically, non-linear, pragmatically or visually without even trying. The creative arts and cultural sectors have certainly been a natural sanctum for so many of us as they have valued our differences and contributions for some time. Stephen Wiltshire MBE, springs to my mind when I think about how a person’s ND gifts has inspired many.

When you feel overwhelmed or unfocused, or have lost your focus, what do you do to get back on track? Do you have any hacks, tips or do you use any apps to keep you on track during the day?
I have lots, but these would be my top 6:

1)Transitioning from one environment to another during my working day can aid my concentration and focus tenfold. Since I’ve fully embraced that transitioning to different spaces is important to my well-being and productivity, I have generally achieved a lot more and feel less overwhelmed.
2)Alternating from a standing desk to a seating position when working is also incredibly important for my focus. Within the studio, there are lots of different positions set up so I can transition around the room.
3) I sometimes have to simplify my schedule. This can often make others feel rejected, but it’s purely to avoid everything becoming too much and preventing burnout.
4) Music. I would struggle to function without music in my life.
5) Get back to the basics, sometimes being non-linear in my thought processes means that basic needs such as hydration, sleep etc can get forgotten. If I’m feeling overwhelmed, I can usually track backwards and see where a basic need is out of sync.
6) Asking for help if/when I need it is something that I have become much better at. For example, my partner has very pragmatic thought processes so their natural way of thinking can be a massive benefit to me when I feel overwhelmed. I like how different styles of thought can complement one another.

What makes you happy?
My nephew, anything second-hand and with a story, fearless friends and family, honesty, food, rain, animals, laughter, autumn, water, genuine acts of kindness and freedom.

What has been your biggest achievement so far?
Re-learning to fully be myself based on actual abilities, and not by the definitions or expectations of others. Choosing to no longer mask my neurodivergence has at times been painful but also very liberating.

Does your neurodiversity have an impact on the way you approach relationships?
Yes 100%, I have a tendency to be naturally curious, which means I’m genuinely interested in people, and if you add high levels of empathy to this, it means I can strike up a rapport with others quite quickly. This doesn’t mean that everybody will like me, that certainly isn’t the case, but I find the combination of my ND gifts means I’m good at building genuine relationships with people. It can also have a detrimental impact too, for example, having high empathy can place you in this ‘Cinderella’ archetype with others which can be quite a damaging dynamic. Empaths CAN (not all) have a tendency to prioritise other people’s wants, needs and emotions over their own which can be a very toxic when you are around the wrong people.

Tell us something about your ND experience, that you think not many people will know, or understand?
I also experience Irlen syndrome (also known by many other names, visual stress etc…), the people in my life will be aware that I wear tinted glasses, have a tendency to change the colour of backgrounds and have a preference for increased text size as this stops headaches, fatigue, visual blurs of text and increases my reading speed. What they may not be aware of is that being sensitive to lights, means I also can be affected during my night time routine as much as it can affect me during the day. Discovering the use of an eye mask has massively improved the quality of my sleep.

If given the choice, right now, to start over again – to ND or not ND?
I definitely wouldn’t change this about myself. Sometimes it’s beyond frustrating to be ND, people don’t fully understand the struggles you go through on a daily basis. It can expose you to judgement and misinterpretation. It is statistically harder to survive within education, employment and we are sadly overrepresented within the criminal justice system. To not acknowledge the collective struggle that being ND can bring would be insincere and offensive, but, for me, my ND is my joy. It helps me to see beauty in so much around me, and I think it has helped me to remain positive within all the uncertainty that is going on around us.

Do you have a Positive ND message to the world? Imagine you have a £5 million advertising campaign to spend on billboards all over the world > What would you say?
I love the idea that someone reading all of the ND positive ideas for this question may have the resources or the passion to make some of these ideas a reality one day. So here goes…
“The way the world sees neurodiversity is finally changing. Although all our neuro-differences are hidden, you are never truly alone, you are a part of a wide, dynamic and ever-growing community…”

Final question – where can people find out more about you. Do you have a website and social media pages.

@hidden.capacities – Instagram
@hidden.capacities – Facebook
@wondering_re – Instagram

www.hiddencapacities.org

Categories
+Stories

André Nice

Name: André Nice
ND Type/s: Autism, ADHD
What do you do: Student
Where do you live: London

 

 

 

 

 

When was your diagnosis and do you know how/why it came about?

When I was 4. It came about because my mother recognised my autistic traits early on and for a while thought I was deaf, it took a lot of effort to get a diagnosis but in the end, I was diagnosed with Autism and ADHD.

How do you stay active? And what do you do to relax?

I play golf occasionally and walk. I relax by doing something creative like writing or crafts, cooking as well.

Do you have a favourite word or phrase?

Brumhilda, Paidagogos, intransigent.

Have you read, watched or listened to anything good recently (books, films, tv, radio or podcasts)? Maybe something that has helped you or changed your views/attitude?

I think this is a bit of a vague question, but I read a book by Robert Graves called Count Belisarius that was good. There hasn’t been anything attitude-changing lately.

Which 5 songs or albums would you want to have with you on a desert island?

In Utero-Nirvana
A Fever you can’t sweat out- Panic! at the disco
Hatful of Hollow- The Smiths
From Under the Cork Tree- Fallout Boy
Songs about Jane- Maroon 5

What is the best piece of advice you’ve ever received and who was it from?

Don’t punch walls, from my grandmother.

What would you like to do when you leave school/college/university? Have you had any work experience so far and how has that gone?

No work experience. Probably something meaningful like an MP.

In what ways has your neurodiversity affected you the most?

Human interaction, creativity, addictive personality, mental health, emotional deregulation, hyper-obsessions.

Creativity and thinking differently are often credited to neurodiversity. Would you say that is true? And if yes, could you give an example?

Yes. I’ve written books and plays, I’m extremely creative in most ways.

When you feel overwhelmed or unfocused, or have lost your focus, what do you do to get back on track? Do you have any hacks, tips or do you use any apps to keep you on track during the day?

I have no hacks, it’s a huge problem of mine. I usually do it at the last second with fear as my motivator.

Are you open about your neurodiversity, or do you try to conceal it?

I am open about it, but I don’t bring it up, I find it offensive when someone says, ‘oh I had no idea you were autistic’. It seems to imply that they assume autism should be more noticeable and that I’m somehow ‘one of the good cases’.

How does your neurodiversity affect new relationships? This can be professionally, socially or romantically.

Mixed. Professionally it is usually an advantage as I’m direct, but it can also lead to confIicts because I forget deadlines and am occasionally rude without wanting to be. Same is true for socialising, I’m very nervous with new people so my list of friends is limited. Romantically it’s mixed, it makes me very compassionate and direct with my feelings but can also mean I don’t take romantic hints and sometimes offend people. I’m also not good at interacting with people so something like chatting someone up is a nightmare.

What makes you happy?

Writing, socialising with people I know, beauty, being alone.

What has been your biggest achievement so far?

Writing a novel, passing my GCSEs, having predicted grades good enough to apply to Oxford University

Do you have a Positive ND message to the world? Imagine you have a £5 million advertising campaign to spend on billboards all over the world, what would you say?

It’s not your fault that you’re ND, it’s their fault that society doesn’t accommodate you.